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Routine and Illness: A conversation about labor, care and structure | Rochester Art Center via Zoom

February 28 @ 6:30 pm - 7:45 pm

Join us for Routine and illness: A conversation about labor, care and structure with artist Weng San Sit, Hanna Barton PH.D., and Kasey Boehmer PH.D., M.P.H. The program is part of Chronicles of the Chronic, a group exhibition that celebrates the creativity and resilience of the chronically ill community by featuring regional, national and international artists whose artistic practice reflects holistically upon the experience of living with a chronic health condition. Learn more here.

 

Online Meeting Information

https://us06web.zoom.us/j/89528558580?pwd=SkINzZiIcQiBLCiYbYmEhoC3Na3Vsd.1

Meeting ID: 895 2855 8580Passcode: 348843

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Meeting ID: 895 2855 8580Passcode: 348843

Find your local number: https://us06web.zoom.us/u/kesEWnvorH 

 

About the panelists:

Weng San Sit is a Singaporean Artist and educator currently based in Los Angeles. Utilizing

primarily still and moving images, San’s work investigates the systems and power structures

that create the dissonance between inattentive, homogeneous representations of marginalized

bodies and the reality of complex and multi-faceted identities. 

 

San received a certificate from the International Center of Photography and an MFA from the

California Institute of the Arts. She was a recent recipient of the Sundance Institute Uprise Grant

and the Korea-Singapore Exchange Grant. Her work has been presented at the Angel Gate

Cultural Center, Vincent Price Museum, USC Keck School of Medicine, City of Los Angeles

Department of Cultural Affairs, International Center of Photography, Objectifs – Centre for

Photography & Film among others.

 

San’s multimedia installation, Routine as Repertoire (2022-ongoing) is featured in Chronicles of the Chronic. In “Routine as Repertoire,” the mundane and tedious task of separating medication is reintroduced to us as a performance she habitually undertakes, much like any other routine we employ in our day to day lives. Illness becomes another aspect of living at the same time that it transforms an individual’s life, effectively disrupting our binary notions wellness vs illness. 

 

Hanna Barton, PhD (they/them) is a human factors and health systems engineer with expertise in field research methods, health information technology (HIT) evaluation, and human-centered design. They envision and design systems of care that honor individuals’ unique life experiences to provide personalized care that addresses peoples’ real needs and desires. A significant contribution of their work thus far has been identifying and describing the home care environments and care work of caregivers, including the strategies caregivers develop to provide effective, safe care in their home. Currently, they are a Postdoctoral Research Associate in the BerbeeWalsh Department of Emergency Medicine at the University of Wisconsin – Madison. Rooted in Madison, WI, their passion for care permeates their relationship to their family and their community. Hanna will introduce Human Factors Engineering and Ergonomics—the study of work—as a framework for understanding how people care for themselves and others, i.e., patient and care work. They will discuss their research exploring strategies developed by caregivers of children with complex chronic illnesses as mechanisms for adapting care processes and devices to fit their unique goals. https://linktr.ee/hbartonphd

 

Postdoctoral Research Associate | BerbeeWalsh Department of Emergency Medicine

Chair | HFES Macroergonomics Group

Co-Chair | HFES LGBTQ+ Affinity Group

Fellow | The Patient Revolution

 

Kasey Boehmer, PhD, MPH, NBC-HWC is an Assistant Professor of Health Services Research and National Board-Certified Health and Wellness Coach. She is a faculty member in the Mayo Clinic Division of Nephrology and Hypertension and the Division of Health Care Delivery Research. She also serves as a health services researcher in the Knowledge and Evaluation Research (KER) Unit and the Rural Health core in the Center for Clinical and Translational Sciences at Mayo Clinic. She directs the Minimally Disruptive Medicine Program of work at Mayo, and her primary research interests include patient-centered care and communication techniques to understand and support the capacity of patients with multiple chronic conditions and their caregivers. She has currently authored or co-authored over 40 publications on this topic, including a systematic review and thematic synthesis to develop a Theory of Patient Capacity. Furthermore, she has developed the ICAN Discussion Aid, a practical communication tool that supports the practice of MDM, to assist patients, their caregivers, and their healthcare teams with discussions about how life and healthcare are working together. This Discussion Aid also supports a practice called “Capacity Coaching” developed by Dr. Boehmer and her collaborators. Dr. Boehmer also grounds her work in her experience of living with six chronic conditions herself and in her interactions with fellow patients.

More information can be found here.